a sarcastic and heartfelt peek into life with a chronic illness. From wrestling with a diva-like mobility scooter to navigating endless medical tests, it’s a journey of misadventures and small victories. Equal parts humor and honesty, this blog turns the challenges of daily life into moments we can laugh (and sometimes cry) about together.
Sunday, May 11, 2025
Missing Pieces
Thursday, May 8, 2025
Friendship in the Click of a Button: How My Virtual WI Became a Lifeline
Saturday, May 3, 2025
Things I Wish People Knew About Hidden Disabilities (Because Apparently, It’s Still a Mystery)
I was in a supermarket queue, parked in my scooter, mentally calculating whether I had enough energy left to unload my basket at the checkout without incident. That’s when I heard it.
“You’d know if they were struggling though, wouldn’t you ?”
Oh boy. Here we go.
I wasn’t planning on overhearing a debate about my existence while waiting for checkout, but life comes at you fast. Hidden disabilities are called ‘hidden’ for a reason, yet some people seem convinced they come with flashing neon signs. Surely, if someone were in pain, overstimulated, or dealing with chronic fatigue, it would be obvious. Maybe a dramatic fainting spell for effect? Collapse on the floor and roll around in pain? Something visible enough to be taken seriously?
Life doesn’t work that way.
Since I didn’t have the energy to launch into an impromptu TED Talk in the bread aisle, I’m putting it here instead. Because honestly? The world would be a much easier place if more people got it.
“You Don’t Look Disabled” Is Not a Compliment - It’s a Problem
Ah yes, because disabilities are meant to be aesthetic. Mine isn’t a tragic movie plot complete with an orchestral score, it’s just daily life. Smiling through pain. Navigating obstacles people don’t see. And yes, sometimes parked in a queue hoping the energy meter doesn’t hit empty before I reach the till.
I could pretend it’s fine. That I’m fine. That I’m ‘just tired’ and ‘it’s nothing.’ But it’s not nothing. It’s everything.
Accessibility Isn’t Just About Wheelchair Ramps - It’s About Reality
Ramps are great. So are lifts, but have you tried processing small print when your brain feels like it’s buffering? Or enduring the blaring lights and endless noise of a packed supermarket while your nervous system screams?
Every step is a negotiation. My body sending warning signals, my mind trying to override them. I reach the checkout, my heart pounding, not from exertion, but from the quiet knowledge that even this, this, is a battle I’ll pretend isn’t happening.
Living with Chronic Illness: The Ultimate Mystery Box
Some days, I can breeze through a shopping trip. Other days, holding a box of cereal feels like weightlifting.
It’s like showing up to a marathon only to realize you started the race yesterday, and everyone else is running while you’re trying to remember how to move.
Willpower Won’t Cure My Disability
Oh wow, what insight! I’ll just try harder to make my body cooperate! I’ll just push through brain fog! I’ll just override my disability through sheer willpower!
Small Acts of Understanding Aren’t Small - They’re Everything
The best thing you can do? Believe people. If someone asks for accommodations, assume they actually need them. If a friend cancels plans again, trust they’re not making excuses, they’re managing their reality. Adjust, be flexible, and recognize that kindness makes the world easier for everyone.
Kindness is free, but understanding? That changes lives.
Final Thought: Thoughtfulness Adds Up, Action Matters
That overheard conversation reminded me, it’s not about fixing everything, but about doing something. A bit of thoughtfulness goes a long way.
The more we talk about this, the better things get, but action matters too. Next time you see someone requesting accommodations or struggling, take a second to support, not question.
Seen or experienced something that made a difference?
Let’s swap stories. Because every conversation helps move the needle forward.
Thursday, May 1, 2025
Morning Moves and Chocolate Curfews: Lessons from Sally McFerrin
Some mornings, the mere thought of getting out of bed feels like an Olympic event. Enter Sally McFerrin, mindfulness coach and all-around wise human, who joined us on the podcast to share her secrets for starting the day with energy and joy. And let me tell you—her advice works!
Sally suggested music and dancing first thing in the morning to shake off that groggy feeling and invite movement and positivity into our day. So naturally, I found myself boogieing in bed, throwing in some dramatic shoulder rolls and what can only be described as an interpretive "wiggle of life." Did I look ridiculous? Absolutely. Did I feel better? Unquestionably! Might I actually get out of bed today? The odds are looking good.
One suggestion of hers I might...adjust...is the idea of cutting down on chocolate (gasp!). I mean, she did say it’s fine in moderation—but apparently, once darkness falls, chocolate consumption should cease. This raises a few important life questions, like: What about cozy nighttime snacks? And are we counting the brief British summer nights? Because, frankly, I plan to use the loophole. Thank you, long evenings, for keeping post-sunset chocolate dreams alive.
Another delightfully unexpected mood booster today? A phone call from my cousin in Australia. There’s something magical about reminiscing over shared moments, swapping stories, and laughing until your stomach hurts, even from thousands of miles away.
So, what have I learned?
1. Dancing in the morning is a game-changer.
2. Chocolate rules are made to be bent (within reason, of course).
3. Joy sneaks up on you in the most unexpected places—whether through a song, a dance, or a long-distance giggle-fest.
All in all, thanks to Sally and some well-timed laughter, today is off to a brilliant start. Now, if you'll excuse me, I have more dancing to do—and possibly some strategic chocolate planning before nightfall.
please listen to myself and Emma chat to Sally on 'Voice of the Vixens' podcast
https://open.spotify.com/show/40gJuZgEcriK2dUnK3tioD?si=630ce04f99c648ab
🥗 Lunch, Laughter, and Local Gems: A Day Out at Battlefield Farm Shop
Some lunches are just meals. Others, the one I had recently with my lovely friend Yvette,are full-on experiences. We headed to Battlefield ...
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Today’s sunny weather promised the perfect opportunity to dust off my mobility scooter and take my canine companions for a stroll. Or should...
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I went to the doctors last week — exhausted, overwhelmed, and carrying a long list of symptoms that have been making everyday life harder t...
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Some lunches are just meals. Others, the one I had recently with my lovely friend Yvette,are full-on experiences. We headed to Battlefield ...


